Working as a Listener with 7 Cups has been extremely rewarding for me, as well as eye opening. I am a Listener on a form of online crisis line for anyone who wants to anonymously chat about anything on their mind that is bothering them.
I've spoken to others just as anxious as me. Those that can't believe a boy doesn't want to be with them any longer (and vice-versa). Those that have no money, no food, and are sleeping on someone's couch. I've chatted with the abused, the lonely, the strange, the perverted, the university student who is struggling to meet the expectations of their parents. The dark lonely person who answers in only one word replies to keep me guessing like a game. I've also helped a great deal of people in my short tenure. Here are some of my feedback reviews:
Have you ever done something for someone and it ended up being the best present to yourself?
Recently I began volunteering as a Listener with 7 Cups of Tea, a community of thousands dedicated to improving Mental Health around the world, one anonymous chat at a time. On the site you'll find a plethora of resources including a guided "Growth Path" with tasks that make you think, forums, group chats, one-on-one chat sessions with your own Listener that is volunteering to man the chat (available 24 hours / 7 days a week). Make friends around the world. It magic and its free.
7 Cups is perfect for those that feel they need to chat with someone but your resources are tight. I stumbled upon them and was invited to become a Listener. Helping others on their life journey allows me to pay-it-forward while it hones my listening skills. I love it.
Feel free to come try it. All you have to have is the need to chat privately with someone who will lend you an ear. The Listeners have no idea who you are and cannot ID or track where you're from. Here's the link: https://www.7cups.com/19598550. They are on Facebook at https://www.facebook.com/7CupsOfTea.
To strong mental health!
This morning I write from my bed in Advent Hospital to share great news.
For the first time in years I woke up free of panic and a racing heart. I do not detect pain anywhere on my body and there is no sign of tremor - internal or external. I am completely still. I have not felt this calm in a very long time. It feels odd and exciting at the same time. So with a big smile I jump out of bed and run to show my nurses. I'm standing straight and tall. I am not leaning forward on misshapen toes that have tried to keep me from falling forward for the last year. My hands & feet are not swollen. The nerve pain running under both upper legs is gone.
I have had such good fortune this year and the Universe seems to be expanding again for me. Finally the mystery of my ailment is truly solved. A second opinion this week confirms what Shands Gainesville first advised last summer; that living as an Early Onset Parkinson's patient for the last 11 years will soon be coming to an end. Ends up a misdiagnosis not caught by University of Miami or Mayo Clinic; the doctors at Shands are my heroes. The first scans of my brain since the DATSCAN in 2013 confirms that my brain is completely normal. My neurologist in Daytona ordered a CAT scan, functional MRI and functional EEG then reported the good news. I have PD symptoms from the large amount of Parkinson meds I take. The news is incredible. Its not going to be easy after 18,500 dopamine tablets and 2,790 unnecessary Neupro patches. Thank God I was turned down for DBS surgery 4 times. I could be regretting holes drilled into my head. With the help of Advent Hospital, I hope to be prescription drug free by next year. I cannot wait to get on my bike again and sleep through the night. Two things I miss desperately. Thanks to everyone who has supported me over the decade. Hopefully next time you see me, my tremors will be gone; replaced by a quiet peace, stillness and gratitude. I have a tough road ahead of me but I'm excited at the visions of me going through my day with tremor, falling or dropping everything. I will make it. Never give up and never give in.
We got this,
We saw some excitement with last year's "new diagnosis" of Functional Neurological Disorder by Dr. Deeb at University of Florida Gainesville / Shands Hospital. It seemed to work. I was titrating off of my high doses of medication and the same time I was working full time, plus taking care of my husband and children. There seemed to be a honeymoon period in there when I was coming off the meds that I seemed to be improving. But that was short-lived over about a 4 week period. Then all my symptoms returned with a vengeance.
My tremor as you can see from the video I made for my last posting announcing my ten year anniversary that I am living incapacitated. I believe my health has been made worse by playing around with my dopamine. Don't take it; do take it" - when? It seems logical that once the stores of 17,000 dopamine pills finally cleared my system, my Parkinson's symptoms went off the charts and has never returned to manageable. Add to that whole-body Dystonia that makes every inch of my body ridged. To the point that the combination of the two - rigidity with high velocity tremor - is causing nerve damage in my wrists, hands, fingers, groin, neck, back, and especially my legs and feet. I have no balance any longer. I fall and can no longer catch my fall so land with my full weight on my hands or my face (as I did in the Midway airport this winter when my sneakers were sticky against the newly polished marble floor. I started to fall forward on my tip toes and ultimately could not right myself so down I went - hard. I quickly picked myself up in pain and headed for my gate with other passengers looking like they just saw a train wreck. That's a good definition of my physical being today - its a train wreck that doctors make no effort to alleviate. I'm not quite sure how worse this needs to get?
Wear Your Heart On Your Sleeve
"Lisa Chalker is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."