If you shop at AMAZON OR EBAY would you do this for me? It's easy. You won't notice any difference. The change just takes you through their invisible portal and a portion of each of your purchases goes to the Michael J Fox Foundation. THANK YOU!!!!
Click the pictures below to get easy instructions on how to set your accounts up to have a small amount of each purchase you make donated to the Michael J Fox Foundation for Parkinson's Research!! I won't cost you anything extra. And you will help millions just like me.
Hi everyone! Exciting news to share...... I have been invited to be a guest on The Parkinson's Radio Hour here in South Florida on Thursday, February 25th from 6-7pm on AM station 1470. Its a 50,000 megawatt station that broadcasts to a population of more than 6,000,000 people. (Not scary at all!)
The interview topic is "Issues and Solutions for Early On-Set Parkinson Disease" and I will be interviewed by host, Jeff Dowd, along with University of Miami Movement Disorder Neurologist, Dr. Henry Moore. My doctors are part of the same U of M system, coincidentally.
I was recommended to the show's producer. The person who recommended me told them that I live with PD with a positive attitude and that I inspire others with and without PD. I have no idea who the person is but thank you for your kind words and I am so happy that you are inspired by me or my story. That is my mission, for sure. To make sure that all who don't have PD appreciate the stillness they don't even know they possess and to make sure that all who do have PD seek out the forms of treatment they need and that work for them. There are so many resources today there is no reason at all to suffer. If you are suffering with it or know someone who is, their mind is playing tricks with them and they don't realize there is a way out. It is up to you as their friend or caregiver to get them the help they need. Remember that when I slip back "into" Parkinson's that I don't realize that it has happened. I need my husband to say "its time" to see my doctor for a tune-up of my medications or to check my progress. He can see when I'm becoming lost; I can't - and neither can your friend or loved one. I'm hoping that my story helps just one person to be better, feel better, live better. Then this journey I've been on has been worth it.
If you can't listen in, the show is available afterwards on podcast. I will get you that address. This show was aired on a different station and those past programs are available at http://wbzt.iheart.com/media/podcast-parkinsons-radio-hour-parkinsonsradiohour/. Wish me luck and listen in if you can.
I learned through the advocate given to me by Partners In Parkinsons, Maggie Barnett, how important exercise is in delaying the progression of Parkinson's Disease in the brain. She strongly recommended that I research the LSVT Therapy (Lee Silverman Voice Treatment) BIG Program and find a PT clinician in my area now while I'm still in the "early to mid" stage of the disease. She advised me that the program - developed in 1987 - has a proven track record of helping to retard PD and as a bonus I can put the techniques I learn in my "toolbox" to use for the rest of my life.
I did my homework online and with my insurance company. Online there are incredible videos on You Tube of before and after program results. I was stunned. Older patients barely walking nto the clinic practically jog out 4 weeks later (the length of the program). How could that be? I called my insurance company and found out they cover 100%. I'm in!!!
Through the LSVT Global website I found a few program certified PTs in my area and settled on HealthSouth Rehab. There I met Erica Leiva, my amazing PT friend. For 4 weeks she tested me, put me through my exercises, challenged me to balancing acts NORMAL people can't do(!), and made me smile every morning for 4 weeks. She improved my balance by a good 50% and counting. I made her stretch and learn to count to 10 while gabbing the whole time. (Was that 10 or 15? Who cares 😄). We had fun and I stopped being dizzy when I sat up in the morning; I can close my eyes in the shower without falling over; and I annoyingly test all my friends and family to make sure they improve their balance into old age. Erica has made me a crazed advocate for the LSVT Program. And I highly recommend it to any and all PD patients. Trust me, you need this program just to affirm you're not crazy. It really is your brain playing tricks. But you can fight back and reverse the effects. It really works. Thanks Erica.
Well I made good use of my time while I waited for the sun to come up and created a "One Face Of Parkinson's Disease" Group site on Facebook.
Facebook is a closed group for my privacy but if you'd like to follow me an you're not an invited member email me through the comment form.
Thank you Aunt Diane for introducing me to Partners in Parkinson's. If you have PD or know someone who does this is a "must have" in your toolbox.
I never knew there were advocates out there dedicated to supporting me and you. Sign up to have an advocate call you. They are trained to help identify all the resources you need to help you live well and cope with changes as they happen.
They also sponsor educational events in a handful of major cities. If you are lucky to live near one I encourage you to take advantage. Learn what's on the horizon. And get that all important group support.
Here's to your health and mental well being!!
Wear Your Heart On Your Sleeve
"Lisa Chalker is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."