I sit in awe and gratitude. I can't register what has happened today. It seems like the whole day is just a dream. I wasn't planning for this. It just happened. Today tremors. Tomorrow on my way to the stillness I seek. I will never forget today as long as I live.
Today I enrolled as 1 of only 100 people in the US for the Final CTH-301 PHASE 3 SAFETY STUDY. The Efficacy Study is closed. That is the double blind placebo study. They are now on to the Open Label version. I will be getting the drug; no placebo. And I start the testing tomorrow and the drug next week. For those that want to check out the study I am joining, click here: http://www.cynapsus.ca/product-p…/apl-130277-clinical-trials
The drug APOKYN has been used for PD for this purpose since 2004 but its only been available in injection delivery. This drug is sublingual (under the tongue). I will take it with each of the 5 doses of dopamine I take a day. It will reduce the "OFF" period from 2 hours in the morning and 45 minutes for all other doses down to several to 15 minutes. Wow!
I think I will go buy myself a lottery ticket tonight. Hey, wait - I have won the lottery!!! Who would have thought 5 years ago when I started to tremor that only 5 years later there would be a way to stop it.
My dream in all of my writings is to return to the peace and stillness I once took for granted.
I might just get that wish. And sooner than I was expecting.
Dream boldly, friends. Never, ever, ever, ever, ever, ever give up. Ever.
Wear Your Heart On Your Sleeve
"Lisa Chalker is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."