ONE FACE OF PARKINSONS.COM
For all things you are given, good and bad, be first grateful.
There is a lesson in every moment.........
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My name is Lisa Vullo. Thank you for your interest in my journey. As you've read, I was diagnosed with Early Onset Parkinson's Disease in November 2013. I started this blog in 2014 at 50 years old as a diary to be able to record my journey.
I'm so happy I did, because 3,443 days into my journey (on June 20, 2018) my diagnosis has been turned on its head - from Parkinsons Disease to probable Functional Neurological Disorder.
My life has been filled with twists and turns. This one came completely out of left-field. And I as start to get to know FND and look back on my writings, my doctor could be right on target.
PD lives in the motor region of your brain; FND lives in the autonomic area - in your "fight or flight" emotional recesses of your brain. Born out of a life of continuous trauma, my motor symptoms are being driven by a disconnect between my central nervous system and my poorly wired brain. I've never been able to make sense of PD. FND research tells me we are on the right track.
I am titrating off of my PD meds and headed into FND PT, OT and good old talk therapy to see if I can, in fact, return to a normal, stable state. Unlike PD, FND is treatable and curable with hard work.
I welcome you to continue following my journey. I feel like I'm in a movie that started as a bad nightmare and is heading toward a happy ending. No one saw that coming. I've always said "NEVER GIVE UP. NEVER GIVE IN". I was handed a possible miracle cure. I've got to dive in now and see if this is true.
Whether you are PD, FND or any other movement disorder, as a patient, caregiver, or health professional - I encourage you to connect with me (or someone close to you) with this heartfelt advice:
Don't go it alone
I hope you'll use the comment form to send me your best ideas, tips and tricks, comments on what has worked and what hasn't, and share with us the name & contact information for any SUPERSTAR health professionals you've encountered for they are rare gems.
May God's peace be with you, our selfless caregivers, and the wonderful doctors that work tirelessly to improve the quality of our lives.
Read my story
Feel free to contact me if you are in need of an Early Onsetter for a speaking engagement, short story or interview. I have the unique perspective of walking with PD every day and am happy to share my experiences to support and benefit others.
Words To Live By
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© 2014-2018 Lisa Vullo