Feedspot once again recognizes us in their "Top 50 Parkinson Blogs and Websites To Follow in 2018"..... Thank you!
For the second year in a row we are honored to be recognized by the RSS Feeder site, Feedspot, as one of the 50 TOP PARKINSON'S DISEASE WEBSITES featured on the web today, Wow!
Thank you to Feedspot's founder, Anuj Agarwal, and his crew for continuing to support and encourage me to write my experiences from the heart and go out and be an agent of change for those of us that have this chronic illness now, for the future of PD, and for those that have not yet been diagnosed. To those who don't know they have it yet and those newly diagnosed, you are the most special to me. Through my blog I want to help you ease into the changes that are going to be happening to your body, mind, spirit, relationships, finances, experiences, and especially what to expect from your doctor(s), insurance, government assistance, pharmaceuticals and medical devices that will all be new and overwhelming to you and lift your hopes with news of what is on the horizon because its not as bad as you think it might be. From me, and all of my fellow bloggers, you will gain knowledge, our experience before things happen to you, and support and love to get you through. YOU ARE NOT ALONE!
You can find the Top 50 Websites and Blog: Feedspot http://blog.feedspot.com/parkinson_blogs/
Note: Their RSS Feed is subscribed by all of the major news organizations (TV, radio, print). If you don't know what an RSS Feed is - you can subscribe to many different publications and Feedspot will send you an email each morning with headlines so you can read what you are interested in vs. having to read every single website individually. Feedspot.com is offering my blog as one of the 50 choices for Parkinson's information available. Please check it out. Go to FEEDSPOT.COM, open an account for yourself and subscribe to my blog along with other amazing outlets, including the Michael J. Fox Foundation, the National Parkinsons Foundation, Parkinsons News Today and the Brian Grant Foundation! I am in their amazing company.
Thank you for the recognition and the honor to support my fellow Parkies around the world. I am only ONE FACE OF MILLIONS OF PEOPLE WITH PARKINSON'S DISEASE. Follow me to find hope, inspiration, stories that are raw and true, mixed in with silliness and dreams for my future. I was given this disease for a reason. I know that to be true. I journey with it so that you can see it is not the END of your life; its only the beginning..............
Dear Ms Vullo,
Dr Uitti and Dr Wharen have reviewed your records and the video from your visit on 3/23/18. Unfortunately, you do not fit our criteria for moving forward with deep brain stimulation surgery.
Dr Wharen has suggested that there are some facilities that offer studies with young onset Parkison's disease patients and utilizing DBS for symptom control. You can look for all research projects throughout the country by going to the website: clinicaltrials.gov.
Please let us know how you are doing with the 2.5 tabs per dose.
All the best.
All the best.
I read this email denial in silence.
I had no reaction.
I have had Parkinson's Disease for 3,365 days that I know of.
I've been alive for 19,582 days.
That's only 17% of my lifetime.
I am finding gratitude in writing that.
My next step....
FIGHT FOR MY LIFE
DON'T GIVE IN
DON'T GIVE UP
PARKIINSONS WILL NOT WIN
There is a reason everything in life happens, in the order it happens. Their "NO" may have saved me from dying the day that surgery may have been planned. Their "NO" may lead me to the right timing of "YES". Their "NO" may have made me work harder to take care of myself and naturally improve my quality of life in the interim. Their "YES" may have stood in the way of something positive I would have missed out on. Maybe its not time to put holes in my head. Maybe a medicine that will stop my progression will be released and that is what I meant to take. My thoughts are not pointing to sadness. They keep pointing to: Something keeps stopping me from having brain surgery. What? It wasn't supposed to happen today. Why?
Footnote: Someone just sent me this link:
From the Journal of Neurology - a Table with Reasons For DBS Surgery Denial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3065636/table/Tab3/
Hope this posting finds you well. I am logging back in in preparation for my third DBS surgery eval coming up this Friday at Mayo Clinic Jacksonville. As exciting as it is, I have angst at the thought of going off all my meds once again. I've had Early Onset Parkinsons since Jan 2009 and have only gone completely off my meds about 5 times total. Last August it was for 24 hours for my social security disability eval. Previous to that was November 2016 for the second DBS eval at UofMiami which resulted in surgery scheduling but my relocation to central Fla cancelled it.
Here we are again - my third surgery eval off meds. This time they only requested I be off for 8 hours but the increase in the severity of my disease between Nov 2016 to Aug 2017 was striking. We are now 7 months later than that and I have a constant low to medium velocity tremor (that only subsides while in deep sleep) I have become accustom to that I didn't have at either time ON my medications. What is in store for me this time?
In August we discovered that I am paralyzed from my neck down through my toes by near rigor mortis-like dystonia, which I didn't know I had before going off meds. I was in shock last August when the doctor could find no detectable reflexes in either leg. I was unable to walk and thanks to cervical and truncal dystonia found it very difficult to breathe with a firm hold on my diaphragm, neck and throat. I wrote my doctor about my angst. My family and I look at each other with concern and say, "only 2 more times" - the eval and surgery day. I go off my meds courageously each time; this time I don't want to do it. It only takes about 6 hours to be fully engulfed by my PD but it takes 3 days for the meds to restore my ability to walk. Its like Cinderella and the pumpkin. I take my meds every day and like magic, I am ambulatory. I walk and do everything I've always done. Off my meds, the polar opposite. I thank Michael J Fox, researchers and doctors for the advances in PD, including this miraculous surgery that was created to halt my tremors, dystonias and dyskinesias. I have friends that have gone through it and all forget they have PD on most days. I cannot wait for my turn. I will be back to post the results after Friday.
Let's pray they schedule my surgery right away. My life is wonderful, happy, and full these days. I want to continue in full bore to enjoy it with the return of peace and stillness. If you do not have Parkinsons, I want you to take a few minutes to take a deep breath, hold it and listen to the silence. Just enjoy and thank God for your ability to be still. for it is a gift you don't realize you have. I will be there with you very soon.
LRRK2 Drug Trial Shares Promising Results,
Company to Begin Second Study
Posted by Maggie McGuire Kuhl,
December 21, 2017
Yesterday Denali Therapeutics announced positive results from its first-in-human LRRK2 inhibitor clinical trial. The experimental treatment is safe, and it lowers LRRK2 protein activity in humans' body cells. This is a meaningful milestone in the clinical development of a drug with potential to slow or stop Parkinson's progression (something no currently available treatment can do).
Denali also shared it is testing a second compound in a separate Phase I trial in control volunteers. Following completion of both trials, one of the two compounds will move into studies in people with Parkinson's carrying a LRRK2 mutation.
Read more below on this project and its treatment potential from our earlier report on Denali's initial public offering.
In a press release, the company announced its first trial showed greater than 90 percent inhibition of LRRK2 activity at peak drug levels. This is a critical early step in testing a drug -- does it do what you want it to do in the cell? Denali used two tests to measure inhibition, including one based on a finding from a Michael J. Fox Foundation-organized consortium linking LRRK2 to another protein.
"Mutations in LRRK2 are a major risk factor for Parkinson's disease. Targeting this degenogene represents a promising approach to develop disease-modifying medicines," said Ryan Watts, PhD, Denali CEO.
Read more on the findings and next steps.
December 8, 2017 -- San Francisco-based Denali Therapeutics has raised nearly $250 million in its initial public offering, marking the largest biotech IPO of the year. In announcing terms of the IPO -- a major milestone in the life cycle of any company as it first offers stock options publicly, garnering capital for growth and expansion -- Denali shared it is testing a LRRK2 inhibitor drug in a small trial of control volunteers.
Mutations in the LRRK2 gene are a cause of Parkinson's disease (accounting for one to two percent of all cases, but behind up to 40 percent in some populations) and are associated with higher activity of the LRRK2 protein. Scientists, therefore, are developing inhibitor drugs to offset that over-activation and protect cells. The Michael J. Fox Foundation has a robust roadmap strategy around LRRK2: funding many studies to understand more about the protein's connection to Parkinson's and how we may target it to slow or stop disease.
While we have not directly funded Denali, our investments have been critical to helping the company achieve its current promising LRRK2 program. Denali has used MJFF-supported research tools in its experiments, and an August 2016 Forbesarticle reported CEO Ryan Watts cited a unique MJFF-led consortium as influential in his decision to license and develop LRRK2 inhibitor compounds. The LRRK2 Safety Initiative tested compounds from Genentech, Merck and Pfizer for safety, finding lung tissue changes were reversible and not associated with functional problems.
"This is a textbook example of what we exist to do: persevere to overcome issues that would otherwise set PD drug development back by years," MJFF CEO Todd Sherer, PhD, told Forbes. "We're thrilled on behalf of everyone living with the disease that a highly-promising target continues to move forward."
Therapies like this -- targeting dysfunction associated with a genetic mutation -- are examples of precision medicine, prescribing treatments based on one's biology rather than clinical diagnosis. Earlier this year another Parkinson's trial began enrolling people with a mutation in the GBA1 gene, also associated with the disease.
A common question is if such therapies will work for people without those specific mutations. While we do not yet know, our Foundation is funding research to draw lines between implicated proteins and pathways, which may lead to wider use of treatments.
As its first human study continues, Denali gained approval to begin a trial of a different LRRK2 inhibitor compound in the Netherlands and also is developing therapies against Alzheimer's disease and amyotrophic lateral sclerosis (ALS). We will share more news on the company's Parkinson's trials as it is available.
Happy New Year and Welcome 2018!! Couldn't resist saying goodbye to 2017 in the LBD I welcomed it. Bye Bye!!
I send warm and joyful wishes to all of my friends and family this Christmas. I'm sorry that I have not been as present this year. 2017 was a long year with my dad's passing and my battle with Parkinsons. I saw major set backs in 2017 but in defiance, I have triumph in my sights for 2018. I live a private life now I don't chronicle on social media. I live it instead. Know that I have found solid ground once again and I am thriving. I am filled with gratitude for the little things. I have tremendous love surrounding me. I triumph over PD some days and I exert more effort to do what came so easy on other days. I walk slower than I used to, but you can't stop me on my bike; that's where I leave PD behind. I look forward to DBS surgery with anticipation. I have so much more to accomplish in this second half of my life. PD will soon move out of my consciousness after surgery thanks to a pulse generator regulating the signals from my brain which will allow me to live in tremor free peace. I smile at the thought of that first day of stillness. Incredible! My health is better than ever and so is my heart and mind. Thank you for all the messages asking for an update. I wish you peace, joy, love, prosperity and very good health in 2018. And don't forget to live life like you mean it by making every day count.
Well lookie here!!!! My new medicine has kicked in. I’m speechless. My feet are not turning inward any longer and my legs feel strong. First time in 3 months I’m headed out to ride. Starting off slowly. Hey, Coach Bleich, let’s roll, brother. ❤️💚💛💜💙
MAYO UPDATE: Love my new doctor. Sharp, professional, great communicator, two decades of advanced work on PD, with his medical partner holds two patents related to a DBS system, and has 3000+ DBS surgeries under their belt. Their approach is conservative giving them only 4 negative outcomes in over 3000 DBS surgeries with only 1 geriatric death (fabulous odds!) In his opinion, surgery is in my future, but NOT TODAY. He asked if I would allow him to dial in an adjusted meds, eat & sleep routine first, which if done correctly should stall drilling holes in my head for another year. Uhhhh, let me think on that for a nanosecond!!!! Count me in Obi Won. I am happy to celebrate my PD's 9th anniversary in rebounded health and living fully. The move to Mayo is God sent in perfect timing. As I write this, I eye my bike sitting patiently in its stand. I have not been able to ride for a few months now. Tonight its whispering, "I'm ready when you are. Let's go for a ride!!!!!" I dust off my helmut sitting on the handlebars and reply in gratitude..... Amen.
Plans for DBS at University of Miami are cancelled. I am moving to Central Florida so Miami will be a little to far for me to commute for follow ups after surgery at U of M. Turning to Mayo Clinic in Jacksonville to take over. How exciting!! Let's see what they say..... Stay tuned.
Big day tomorrow. Headed to University of Miami for my first appointment on the path to deep brain stimulation surgery. January it will be nine years since my first symptom of Parkinson's. I count my blessings every day. Thanks for hanging in there with me. ❤️
Great news to share. My disability was finally approved. Thank you Sen. Marco Rubio for your help when I needed it most. Yesterday I was blessed by Florida Blue with full health coverage and my doctors at the University of Miami have swung open the doors to start the surgery process with my first appt on 9/7. There is a bright light showing me the way out of this tunnel. Thank you for your love, unwavering support and prayers. My guardian angels never sleep.
Everyone who follows me knows I am a bright light for upbeat and positive living to deal with my Parkinson's Disease. This morning brought about a REALITY CHECK in this letter to my family (please excuse the expletives for which I have earned and am unapologetic after 8 1/2 years on my PD journey.) I write :
To My Family,
I've just made it through another sleepless night after not being able to stay asleep. Thank you Parkinsons-induced insomnia. I officially hate you.
My problem? A skyrocketing level of stress I cannot shake after the experience of going off my meds TWICE and witnessing my underlying condition. My body hidden by bottles of expensive medication is unable to breath comfortably at my diaphragm, my neck contorts my head to the right and upward pulling my chin diagonally away from my body painfully out of control, all while my muscle twist and turn in agony as I cry out loud then sob with each misfiring nerve in all my limbs; all four stuck straight out from my body like a corpse. I cannot sleep. I cannot walk. I have no reflexes in my legs. Everything hurts. I have Stage 4 Parkinsons under this expensive medication. I am scared shitless and I cannot handle this by myself.
My fears are exacerbated by living alone, which I've never done before. I've officially failed at my attempt. My fears foster a depression that disappears as soon as I am with you. I want to live a happy, full, healthy, active life. I want to jump out of bed in the morning and enjoy a productive day. Those days are gone. Replaced with no motivation to get out of bed or leave my apartment under the weight of constant panic. I feel like the earth is rumbling beneath me. I'm on very shaky ground and trying desperately to hide. Another person's energy is all it takes to light mine up and motivates me to make shit happen. I take my meds on time and completely forget I even have it. It is clearly night and day and there is no doubt about it. Living alone has taken its toll since dad died and I am struggling. I woke up yesterday morning with the highest stress levels I've had since coming back to Florida in 2013. Frankly, I scared the crap out of myself and was sure I was going to be making a trip to the ER for the sheer inability to get my out of control rapid heart beat pounding in my chest under control. I swore it was going to end in a heart attack That's it. I've had it. Now I'm pissed off and I need to take action now. I refuse to live this way.
Asking for help does not come easy or naturally for me. I'm usually the one that gives it. I refuse to continue to pretend I can handle this. I can't. I need to recover from the last 12 months of constant change. I went from Stage 2 to Stage 4 PD in only a handful of months. I need to reverse this and quickly. I refuse to let it get any worse and the first step on my road back is to get out of here.
I waiting for the landlord's answer to vacating my lease early. Mom has offered to take me in to care for me. I gratefully accept her offer.
I am not waiting for PD's answer. Only I can reverse this mental ping pong. I need to get on with living, not dying, and the first step is to rejoin the world by stop feeling sorry for myself. The last 12 months have been challenging to say the least. I promise to admit what I can and cannot do. Do what I can to the best of my ability and quit trying to make everything perfect. That was my old life. I am not okay on my own. I need to eat, sleep, exercise, meditate, take my meds on time, dream, create, laugh, run, ride my bike 10 miles a day, and fucking enjoy life while my meds still work. Like Cinderella I can magically walk and run but don't know how or why. I need to stop thinking and start living before I turn into a giant pumpkin. RECOVERY WILL NEVER HAPPEN LIVING ON MY OWN. I am not wasting another day. This is a 10 round match. PD may have won round 4. Round 5 ends in a knock out. I've had enough of this shit. I need to get over myself. Whatever you do, do not allow me to live on my own. I suck at it. Royally. Come see me and bring a ladder so I can climb out of this mother fucking hole I have made. I've got important shit to do. Losing to Parkinsons is NOT one of them. Not today.
MORAL OF THE STORY: Be careful NOT to tick off a warrior. We fight back dirty!!!
In my lifetime! Told you!!!
CLICK HERE: https://parkinsonsnewstoday.com/2017/06/15/affitope-pdo3a-vaccine-triggers-immune-response-against-protein-linked-to-parkinsons/
AFFiRiS’s new Parkinson’s vaccine, AFFITOPE PD03A, triggered a solid immune response against the alpha-Synuclein (aSyn) protein associated with the disease, according to a Phase 1 clinical trial.1
Patients also tolerated the therapy well, researchers said.
Werner Poewe, a professor at Austria’s Medical University Insbruck, presented the results at the 21stInternational Congress of Parkinson’s Disease and Movement Disorders in Vancouver, Canada, June 4-8.
He is part of a European collaboration known as SYMPATH whose aim is to develop vaccines targeting the aSyn protein. The collaboration involves AFFiRiS and seven academic and industry partners in Germany, France and Austria. The European Union is financing SYMPATH.
The 52-week Phase 1 trial (NCT02267434) evaluated the immune response, safety and tolerability of AFFITOPE PD03A in patients with early Parkinson’s disease.
Researchers randomized 36 patients to receive one of two doses of the vaccine or a placebo. One dose was five times larger than the other. The basic immunization was an injection a month for four months. At 36 weeks, patients received a booster immunization.
The vaccine triggered immune responses against the aSyn protein over time. The reactions were dose-dependent, meaning that the higher dose triggered a stronger response than the lower one. The booster immunization reactivated the vaccine’s antibody production, researchers said.
Both doses of the vaccine were well tolerated, with patients reporting no serious adverse events.
AFFITOPE PD03A is a synthetically produced aSyn-mimicking peptide — or protein component — that targets the aSyn protein.
ASyn plays a key role in the onset and progression of Parkinson’s. Current treatments can only alleviate the disease’s symptoms. Scientists say aSyn has the potential to actually slow the disease’s progression.
SYMPATH researchers hope to develop an aSyn-targeting vaccine for multiple system atrophy as well as Parkinson’s. The consortium has already created a vaccine besides AFFITOPE PD03A, known as AFFITOPE PD01A. A key reason the EU became involved in the project is that current therapies for many neurodegenerative conditions are unable to alter the diseases’ course.
“The immunogenicity profile [of AFFITOPE PD03A] looks encouraging and supports the hypothesis that patients elicit an antibody response specific to alpha synuclein, a protein that is believed to be contributing to the pathogenesis of Parkinson’s,” Poewe, the principal investigator of the study, said in a press release.
For those following my Parkinsons, I am getting my wish and being re-evaluated for the DBS surgery. Hope its my day next Friday, June 23rd. I hope to finally get past these tremors. At 8.5 years the velocity and frequency is disruptive at best. A giant pain in my a** is more like it as it reappears 6 times every day. Can't wait for the day they turn the gadget it on and I am finally able to sit still once again. That moment lives in my dreams. Praying for reality.
Videos: Before and after meds Saturday morning.
Wish me luck.
SAN FRANCISCO — Tech company developer conferences always feature a wacky demo or three.
But at Build 2017 in Seattle Wednesday, Microsoft went for the waterworks at the conclusion of CEO Satya Nadella's keynote address: it showcased a prototype watch that temporarily eliminated the arm shaking that often plagues those suffering from the neurological disease Parkinson's.
After a speech that both heralded and warned about coming leaps in technological power, Nadella screened a video that told the story of two British Microsoft Research employees, Haiyan Zhang and Nicolas Villa, who developed the tremor-interrupting device for a BBC documentary, The Big Life Fix
The Emma Watch, a prototype that was shown at Microsoft Build 2017, can still the trembling arms of those suffering from Parkinson's. (Photo: Microsoft)
Working with graphic designer and Parkinson's sufferer Emma Lawton, 32, the researchers developed a watch — which they named Emma — that, according to Microsoft, "vibrates in a distinctive pattern to disrupt the feedback loop between brain and hand."
When the lights went up, Nadella welcomed both Lawton and engineer Zhang on stage, thanking them for showing that thanks "developers can have impact."
Emma Watch remains a prototype, Microsoft says, but the developers are working with a neuroscience research team to undertake trials with a small group of Parkinson's sufferers.
The watch works through a combination of sensors and AI (artificial intelligence) techniques to potentially detect and monitor symptoms like tremors, stiffness and instability, among others, according to Microsoft. "Once these symptoms can be identified and measured, it’s possible to develop technology and devices that help humans manage their symptoms. AI is used to classify the sensor information and elicit real-time responses on small devices like wearables."
ing to draw a square with her shaky right hand, and then again, wearing Emma. Watson erupts in tears as she calls her mother to say this is the first time she's been able to write her name in ages.
Microsoft stresses that Emma Watch is not a cure for the disease, which afflicts 10 million people. "Rather, its technology has the potential to help Parkinson’s patients manage symptoms that impede regular functions. The goal of further research is to determine whether Emma Watch could help other people with similar Parkinson’s symptoms."
Follow USA TODAY tech reporter Marco della Cava on Twitter.
I have been struggling with my balance lately. If you are experiencing the same, grab a bike and go for a ride. It stops tremor (temporarily), improves your balances and raises your endorphins. Plus you're not cooped up inside feeling sorry for yourself. Get out and enjoy the fresh air!
Do you have an Application pending with Social Security for Disability (like me) and you are waiting for a determination? Read this posting for a hidden secret to expediting it.
I BELIEVE I HAVE STUMBLED ACROSS ONE OF THE FEDERAL GOVERNMENT'S BEST HIDDEN SECRETS.......
Do you have an application in to Social Security for Disability (like me) and you are waiting 6-9 months for your "determination"? Did you know that each US Senator's office is staffed with caseworkers waiting to assist you with expediting requests to any of the federal agencies below should you have a valid need for help? This is one of the services provided to us that no one knows about. What a find!!!
Need help getting your application expedited? Go to your Senator's website. Look for the "PRIVACY ACT CONSENT FORM". download it and complete it with a short description of what I you need their help with. In my case, within 7 days I will be assigned a caseworker to discuss my application in depth. I will then work one-on-one with this person to come up with a presentation my Senator, Marco Rubio will make on the Senate floor for approval to ask the SS Admin to expedite the determination of my case. If SS approves my app, Rubio just cut through the red tape for me and saved 3-5 of more of my life waiting!!!!!!
Here is Rubio's website link: http://www.rubio.senate.gov/public/index.cfm/casework#ED306E3C-77F6-47F3-8F9F-665024733180
Here's the list of departments your Senator can assist you with:
Labor (for immigrant Foreign Labor Certifications)
Immigrant and Non-Immigrant Visas
So if you or anyone your know has submitted a claim for disability to Social Security, don't wait. Get your signed form in today!!!! Please be sure to share this post if relevant to anyone you know.
NOTE: The Senator can only assist with the request to expedite. This will not help or hurt the determination for your case; only expedite it. Your Senator cannot fight for you or answer any legal questions. They also cannot assist with appeals. Read the area on your Senator's website carefully for the limitations and how to apply.
I hope I helped at least one person with this "secret" information. Please feel free to share this to your social media to help spread the word.
Have Parkinsons or Are You a Caregiver? Looking for an Online Support Group that Really Works? Check Out MyParkinsonsTeam.com
As you know I've had Parkinson's Disease for 8 years and counting. I have subscribed to and browsed nearly 100 Parkinson's related websites, support groups, and blogs to read up on the latest treatments, funding, research and to listen carefully to how other people, just like me, cope with Parkinson's every day.
Boy, did I find a treasure. You must check it out. I'm not sure how I came across MyParkinsonsTeam.com, but I am so pleased I did. This is not your ordinary Support Group. Its the design that really makes this one work.
Typically a Support Site / Group will allow one member to post a question or comment and everyone responds. Its a bit interactive, but you don't know other member's STORY. When you sign up with MyParkinsonsTeam.com, you start your own profile page that is the most individually comprehensive profile I have reviewed. In your profile page you get to tell everyone your "story" in your own words. You share with others your medications and treatments (what works and what doesn't). You list YOUR personal PD medical team; you can also recommend them or comment on their services. Your profile also includes relationship status and you can participate in a Q&A section with guided questions to answer. I felt right at home immediately.
MyParkinsonsTeam.com was designed for individuals to meet other individuals that are either in their local area (perfect for meeting other PD journey men and woman you didn't know lived close by for support) or have your similar symptom pattern or treatment regimen. Once you find someone who fits the profile of someone you would like to have on your personal "Support Team", you simply add them at the touch of a button and write them an introductory note.
I've only been a member for about a week and I already have a "team" built of 13 like-minded PDers. Although I love my PD circle to be eclectic, I do lean towards the more active, well rounded, fiercely independent survivor who is doing everything they need to do to live with PD successfully and encourage others to do the same. I can hardly believe the wonderful people living with PD I've met so far from around the US. We chat one-on-one, we can meet locally for a cup of coffee, you can write out questions for your "team" to answer, we swap information on what works best, and I have come to look forward to connecting with members of my team on a daily basis. It is not a chore; it is similar to your own PD family you build yourself.
I very highly recommend this PD Support Site. I can easily say its in my Top 3 of all time. Check it out and sign yourself up at www.MyParkinsonsTeam.com. You will thank me later.
Here is my Personal Profile I set up on MyParkinsonsTeam.com. Feel free to add me to your team and let me know what you think of this site.
Do you need support?
Find us on Facebook at:
"Help Take Back My Life in 2016" (aka Lisa's Super Hero PD Support Team)
Connect with me online:
"Lisa Vullo is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."