Hope you are having an amazing long weekend with friends or family doing something fun that feels like vacation to you!!
In the craziness of this past week working around the clock I forgot to pass on some news.....Visited my neurologist at UofM on Thursday who gave me the results of the newest tests. The verdict? She look dumbfounded and said they are not sure how or why but it appears that since tests 6 months ago, I am getting BETTER, not worse. "PD patients dont get better!," she tells me and blinks her eyes in disbelief.
My nickname there is "a freak of nature" because as the brain scans show I am in an advanced stage of Parkinsons, but I dont outwardly reflect it. If you live near me, you know. My Dr believes that somehow my brain has adapted to the deficiencies over time and wont succumb to my illness. Like someone who has had a portion of their brain removed but recuperates to a point there is no noticeable deficiency. Rare and unexplainable. Or stubborn and obstinate is probably more like it.
I dont appear outwardly to have PD for some reason. I do still have symptoms in the morning like my video shows but thats pretty much it until the meds kick in. She said "we are not changing anything. Do exactly what you are doing now. Exercise more and try to reduce your stress and we will see you in 6 mos.". No surgery for now.
She asked why I thought I am getting better. I believe it is the size of my prayer circle. I have so many people praying for me that I very sincerely believe that is the difference. Every morning I ask God for one more good day and I promise to do good things with that gift. And every morning I am granted that gift.
We toast this weekend to the miracle of good health, the power of prayer, and the love of our posse of friends and family as Lee works hard to get the RV ready for our vacation trip home to Wisconsin to celebrate the 4th of July. Our friends and family there will never believe it!!!
Thank you for your prayers. Whatever you do, DONT STOP. Prayer, love, science, and nature combine to defy the odds. How lucky am I?
Do you need support?
Find us on Facebook at:
"Help Take Back My Life in 2016" (aka Lisa's Super Hero PD Support Team)
Connect with me online:
"Lisa Vullo is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."