WOW!!!! We've been waiting years for this. This is where your donations are going. My heart is racing........... Thank you!!
FROM THE MICHAEL J FOX FOUNDATION: http://bit.ly/YRRXZm
Received my newsletter from PAN today (The Parkinson's Action Network) and it included a story about a man in Seattle that is my age, was diagnosed at the same time I started tremoring AND is only affected on his left side. He underwent successful Deep Brain Stimulation surgery that is becoming more safe and more commonplace. Miraculously he no longer tremors and is off his meds.
Read his incredible story here
Maybe it's my miracle too one day?
PS: If you don't already get their newsletter I encourage you to sign up for it at parkinsonsaction.org. It's the best resource for culling the most current information.
The one thing I've never been is one who likes to exercise. I've always been slim so have never had to diet or lose weight. I also come from a sedentary family. Exercise was never encouraged or suggested for that matter in the 60s and 70s. Everywhere you read about PD the doctors say "Exercise, exercise, exercise". I say "UGH!"
I feel relatively well on my medications. There isn't any barrier to exercising, except for increased tremor in my left arm and hand when my blood pumps. That would tend to make me (and I'm sure other tremor sufferers) avoid exercising in public as I hate that to be an attention grabber. I thought I might begin with a piece of newfangled equipment they have out for use at the office. I'm in my own private space. And I can keep working. Good combination. But will I like it and stick with it???
As one who doesn't exercise, just researching exercising makes you feel like you've accomplished something without having to break a sweat. I kinda like that. I made sure to spend a lot of time on research!!! Even drank Gatorade to rehydrate.
Not too long after I came across the DeskCycle Exercise Pedaller. Hmmm. I really enjoy a casual bike ride but don't take time out of my day to do any. This could be interesting. It received fabulous reviews. It's only 10" tall so fits neatly under any desk height. Pleasant to look at; it appears in pictures to be very sturdy and uses magnetic resistance for silent operation so I won't bother other people. Love the price: $160 with free shipping from Amazon. I was contemplating a gym membership, but at almost 50 years old know myself very well; I won't use it so will waste $35 or more a month AND feel guilty every day. I ordered it.
My DeskCycle arrived on Tuesday this week and my McGuyver husband put it together. (Actually it's simple to do. A few screws and it comes with it's own tool.) He installed it under my very small, very short metal and glass desk. I secured the Velcro strap included to my rolling chair and put my feet in the peddle straps. That's all it took to get started.
I hate to giveaway the ending but I love this machine!!! I wasn't sure if my knees would clear the desk (they do), if I would be able to work and peddle at the same time mentally (I can!), or if it would make me break out in a sweat so badly I would need a shower at the office (I must not be completely out of shape because no sign of this). The DeskCycle lives up to the write ups. It is sturdy, silent, and provides a smooth pedal. It feels similar to a recumbent bike. I am pleasantly surprised and actually look forward to pedaling every day!!! Yes, I just wrote that.
I pedalled as much as I could fit in for the past 3 1/2 days as I'm getting used to making it a part of my day. It suprisingly added up to 20 miles. It certainly don't remember pedaling that far or for that long. One great thing is you're distracted from exercise by your work!! You could clock dozens of miles and not even realize it. PERFECT! Just like researching you get that high of imagining your exercising, except now you're actually doing it.
After the first day I noticed my thighs were sore (I'm starting off with a tension level of 5 out of 8). By the fourth day my legs do not feel as shaky when I walk. Markedly noticeable while strolling with my dog. Hmmm.
I betcha if I keep this up it really will improve my balance, my muscle tone, my posture (it makes you sit up straight in your chair - awesome bonus), my strength and maybe even trim my legs, thighs and butt. Forget all of that - the DeskCycle is plain fun and easy. Definitely worth the price and I highly recommend it.
Check back with me for updates. I'm hoping this inspires me to add free weights to tone my upper body and then feel confident about that yoga class. Wait, let's not get too ahead of myself. Anyone have a cookie? 😀
Received great news today for the Parkinson's community via Parkinson's Action Network. Read about it here: http://www.congressweb.com/parkinsons/23/takeaction/go/publicgrrecid/27259E19-1D09-296B-DAF9106CA5675121/eid/FJVJWTPCIX
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"Lisa Vullo is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."