I sit in awe and gratitude. I can't register what has happened today. It seems like the whole day is just a dream. I wasn't planning for this. It just happened. Today tremors. Tomorrow on my way to the stillness I seek. I will never forget today as long as I live.
Today I enrolled as 1 of only 100 people in the US for the Final CTH-301 PHASE 3 SAFETY STUDY. The Efficacy Study is closed. That is the double blind placebo study. They are now on to the Open Label version. I will be getting the drug; no placebo. And I start the testing tomorrow and the drug next week. For those that want to check out the study I am joining, click here: http://www.cynapsus.ca/product-p…/apl-130277-clinical-trials
The drug APOKYN has been used for PD for this purpose since 2004 but its only been available in injection delivery. This drug is sublingual (under the tongue). I will take it with each of the 5 doses of dopamine I take a day. It will reduce the "OFF" period from 2 hours in the morning and 45 minutes for all other doses down to several to 15 minutes. Wow!
I think I will go buy myself a lottery ticket tonight. Hey, wait - I have won the lottery!!! Who would have thought 5 years ago when I started to tremor that only 5 years later there would be a way to stop it.
My dream in all of my writings is to return to the peace and stillness I once took for granted.
I might just get that wish. And sooner than I was expecting.
Dream boldly, friends. Never, ever, ever, ever, ever, ever give up. Ever.
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"Lisa Vullo is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."