I am pleased to report that this visit was everything we wanted it to be.
Everything went perfectly except the dose is still too low. I need one more appointment on Friday morning to go to 20mg which should be on the money.
Monday I did not come fully "ON" before having to take the rest of my meds.
Today I came fully "ON" at about 25 mins.
They suspect that on 20mg I should be "ON" in 10 mins which is perfect. Down from 120 MINUTES!! Holy cow.
Again I didn't sleep last night because I have to be off all meds to do the testing so I am going home to sleep it off. I have been up for 31 straight hours and counting.
I feel GREAT!!! This is a rescue-type of drug so it zooms me from OFF to ON. Not so fast that it is uncomfortable, but fast enough that I can feel everything calming down and coming to. It is the coolest feeling ever!!!!!
This is going to dramatically change my schedule and our lives. This is God's perfect timing for all the excitement and growth we have coming up. As soon as it zoomed me to life (in about 2 mins) I started tearing up. What an amazing relief. I wish I could adequately share the experience.
Thanks again for all your prayers, support and love. IT WORKED!!
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"Lisa Vullo is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."