Hi everyone. I am so excited to report that I have volunteered for CTH-300: A Phase 3 Study to Examine the Efficacy, Safety and Tolerability of APL-130277 for the Acute Treatment of OFF Episodes in Patients With Parkinson's Disease. 3rd phase is the final phase before being approved to go to market and this one is tailor made for me. (I am joining the final Safety study)
They were searching for PDers that take a min of 4 doses of dopamine a day (I take 5) and that experience at least 2 hours of OFF time each morning. That's me!!!! I chatted with the study doctor's office in Boca yesterday and will be tested on July 26th. The drug is a sublingual (under the tongue) strip that I use with my regular medicine regiment. It cuts the wait time from OFF to ON from 2 hours (or 45 mins for each of the other 4 doses I take) down to 15 mins!!!! So I should hopefully cut the time I am annoyed each day to only 1 hour 15 mins total. That's down from about 8 hours a year ago....and another positive step toward my dream come true.
I am happily biding my time waiting for the drugs that slow or stop the progression to hit the market. They are only around the corner!!!! Yay. Thank God for Michael J Fox.
PS: the drug company is so positive they went public with an IPO on June 30th ❤️❤️❤️
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"Lisa Vullo is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."