You know what? This whole Parkinson's rollercoaster I've been on throws me no surprises any longer.
My medicine regimen a constant shift of up and down in dose. It's destroyed parts of my body that may never return to full function. After 7 years of begging for a second DATScan to (at a minimum) see if there has been any progression Is finally granted.
I received partial results today of last Thursday's DATScan (with the full details tomorrow). THE COMPARISON BETWEEN 2013 AND 2020 DATSCANS CONFIRMS THAT I MOST DEFINITELY HAVE PARKINSONS DISEASE. I believe they will tell me that it is a slowly progressing version of it, but the test proves my DNA transmitters are now at trace amounts at best.
I am not surprised or shocked. Maybe the medical community will take me seriously and figure out how to treat me properly and stopped f*(*ing around. I am sick of doctors. All I need is my new neuro to agree to give me the abdominal pump which would feed me a much lower and consistent level of dopamine right into my bloodstream or worse cast DBS. In the meantime, I make a resolution to just simply get myself health. Mind, body, spirit.
What a journey this has been. I used to rush, desperately trying to find a cure. With time comes wisdom and a tolerance. If you would have told me that I would have continuous tremors as a middle age adult, I would have scoffed at the notion. I would not have thought I would be able to live with a disability, but you do adapt. You're afraid of it at first, and then you try to learn everything about it, and then you become a patient expert and advocate for your yourself and others.
I am a Parkinson Warrior. I am tough as nails and I will not ever give up or give in. I am at war with this invader and now that its confirmed, I feel confident I know the keys to living well with it.
At last an answer and a vindication. I was right; I have this disease. Doctors have been a blessing and a curse. If you have a good one hold tight. If you don't do not waste your time.
My life is very full and very busy. I'm still here to enjoy another day and that's all that counts. I'm not in a wheelchair, nor do I need any assistance for the most part. I am hoping my consult with my new neuro (who i really like, Dr. Erik Aragon in Orlando) gives me some solutions that will actually work, not just bandaid the symptoms. Will keep you posted.
All my love,
PS: I will get a copy of the DATScan on a disk. I will post a screen shot so you see the difference between a healthy brain and an abby-normal one like mine :)
Wear Your Heart On Your Sleeve
"Lisa Chalker is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."