This is my story. My doctors believe my Parkinson's is environmentally connected. My DNA was tested and do not have genetic markers for Parkinson's yet I have just completed a second DATSCAN (2013 & 2020) confirming that I have PD. Need proof? Click here for a 1976 South Florida Ecological Study of soil samples in my neighborhood: https://pubs.usgs.gov/pp/1011/report.pdf. From 1973-1975 I, along with my neighbors, were overhead crop dusted with DDT numerous times in order to eradicate the mosquito population coming in from the Everglades. Pests to residents, it was also meant to stop the spread of insect-bourne diseases like Malaria. It was a yellow powder that rained down on us as we played outside. I still remember it today. This study documents the invasion of the human population into native South Florida wetlands that were literally landfilled to make acreage for tract home communities. The water was filled in with soil and the water was runoff into drainage canals. We had one that run alongside Bailey Road (C1 or C4 canal, I believe). At one point humans and ecology clashed in the early-mid 70's and they came to a crossroads; decide whether to continue on the path of ecological destruction which ultimately wins and causes human destruction like my disease. The Florida government took the high road and the ecology won. They stopped the overhead spray but the levels of toxins were 1000% above normal in soil studies.... and still are to this day. The same neighborhood. Scientists predict it will take more than 100 years. A lasting legacy that we have no recourse for. Toxins most likely did this to me and thousands of others. Pharma researchers are on the path to finding the antidote that will block those toxins from continuing to destroy human dopamine transmitters in the brain. The toxins turned a switch on. The antidote (treatment) will turn it off. Funding research and legislation to clean up the environment is vital to the health of our planet. Look for my new Parkinson's research fundraising campaign coming soon. Help me help foundations help scientists eradicate Parkinson's Disease. Never give up and never give in.
My heart spoke to me. I wrote down what it said. To no one in particular. Perhaps it was meant for you. If it is, my heart goes out to you...........
Pure love was all you were on the day you were born. You were a bundle of cells that formed and thrived and lived and entered the world with a fresh start. From that moment you took your first breath, time began to build your personal journey with the world around you. You were influenced by people who surrounded you. They taught you everything you needed to know in order to communicate your needs so that they could care for you until you were capable of making the simplest decisions on your own. Up until then you knew nothing but love and gratitude for the one that fed and nurtured you. As soon as you saw them you simply smiled and your caretaker smiled back. The simplest and purist form of saying, “I love you.” You didn’t know to look at them harshly or in anger. You didn’t think to yourself, “This person is beautiful,” or “I hate this person because they did this or that.” You also didn’t have any opinion about what people did around you. Your brain did not yet have any experiences you would use to comprehend the world in a complex way. You were only able to smile, look around, sleep, touch, smell, and take in the world without any judgement. You lived from how you felt and you were purely honest, because you didn’t yet know how to fake it or lie. Those were learned responses.
NEVER GIVE UP & NEVER GIVE IN !! You've got that right...
11 Years, 5 Months, 4 Days...... January 15, 2009 (Age 44) - June 18, 2020 (Age 55)
My first DATSCan was performed on 11.15.2013 initially diagnosing me with Parkinson's Disease. Five years later I convince my new neuro to perform a second comparative DATScan. Below is the proof. My right side putamen shows up pure black on the scan from being void of any dopamine transmitter activity (which is why the entire left side of my body is in continuous tremor). The left side of my brain (which controls the right side of my body) is still hanging in there with trace, minimal activity. It confirms without a doubt, I have PD. So much for my most recent (idiot) neuro, Dr. David McDonald (of Neurology Associates of Ormond Beach - avoid them at all cost). At my last appointment he told me to be quiet and listen. It is his opinion that my tremor is fake (his precise words were "the fakest tremor I've seen in my entire career") and that I just need to get off my meds and see a psychiatrist. I think it's him that needs therapy and a course on how to improve his bedside manner
I am just off a FaceTime call with my new neurologist, Dr. Aragon. I see him for the first time since he ordered the DATScan. I'm not even shocked or moved by the news because it only confirms what I already know. He tells me, "Forget about Functional Neurological Disorder. There is no doubt about it; You have Parkinson's Disease. The second test confirms the first - it is positive." He goes on.... "With this news we now need to look at the long term for you. You are way over medicated. You'll never be able to go the distance at the dopamine intake that you're at now. We've got to slow it down."
I run through the list of Parkinson's specific-medications I take:
You know what? This whole Parkinson's rollercoaster I've been on throws me no surprises any longer.
My medicine regimen a constant shift of up and down in dose. It's destroyed parts of my body that may never return to full function. After 7 years of begging for a second DATScan to (at a minimum) see if there has been any progression Is finally granted.
I received partial results today of last Thursday's DATScan (with the full details tomorrow). THE COMPARISON BETWEEN 2013 AND 2020 DATSCANS CONFIRMS THAT I MOST DEFINITELY HAVE PARKINSONS DISEASE. I believe they will tell me that it is a slowly progressing version of it, but the test proves my DNA transmitters are now at trace amounts at best.
Wear Your Heart On Your Sleeve
"Lisa Chalker is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."