Working as a Listener with 7 Cups has been extremely rewarding for me, as well as eye opening. I am a Listener on a form of online crisis line for anyone who wants to anonymously chat about anything on their mind that is bothering them.
I've spoken to others just as anxious as me. Those that can't believe a boy doesn't want to be with them any longer (and vice-versa). Those that have no money, no food, and are sleeping on someone's couch. I've chatted with the abused, the lonely, the strange, the perverted, the university student who is struggling to meet the expectations of their parents. The dark lonely person who answers in only one word replies to keep me guessing like a game. I've also helped a great deal of people in my short tenure. Here are some of my feedback reviews:
Have you ever done something for someone and it ended up being the best present to yourself?
Recently I began volunteering as a Listener with 7 Cups of Tea, a community of thousands dedicated to improving Mental Health around the world, one anonymous chat at a time. On the site you'll find a plethora of resources including a guided "Growth Path" with tasks that make you think, forums, group chats, one-on-one chat sessions with your own Listener that is volunteering to man the chat (available 24 hours / 7 days a week). Make friends around the world. It magic and its free.
7 Cups is perfect for those that feel they need to chat with someone but your resources are tight. I stumbled upon them and was invited to become a Listener. Helping others on their life journey allows me to pay-it-forward while it hones my listening skills. I love it.
Feel free to come try it. All you have to have is the need to chat privately with someone who will lend you an ear. The Listeners have no idea who you are and cannot ID or track where you're from. Here's the link: https://www.7cups.com/19598550. They are on Facebook at https://www.facebook.com/7CupsOfTea.
To strong mental health!
This morning I write from my bed in Advent Hospital to share great news.
For the first time in years I woke up free of panic and a racing heart. I do not detect pain anywhere on my body and there is no sign of tremor - internal or external. I am completely still. I have not felt this calm in a very long time. It feels odd and exciting at the same time. So with a big smile I jump out of bed and run to show my nurses. I'm standing straight and tall. I am not leaning forward on misshapen toes that have tried to keep me from falling forward for the last year. My hands & feet are not swollen. The nerve pain running under both upper legs is gone.
Just got the call from University of Florida Shand's Hospital in Gainesville. An openiing came up tomorrow. I don't have to wait until May. I hope to get some good news and help managing what I can no longer.
I turn to my favorite quotes:
"The future belongs to those that believe in the beauty of their dreams," - - Eleanor Roosevelt
"Joy comes to us in ordinary moments. We risk missing out when we get too busy chasing down the extraordinary" - - Dr. Brene Brown
“You’re braver than you believe and stronger and smarter than you think.” —Winnie-the-Pooh
"Acceptance doesn't mean resignation; it means understanding it is understanding that something is what it is and that there has got to be a way through it,' - - Michael J. Fox. Amen Michael. Thanks for the reminder.
Will be back tomorrow to report the results of my visit. Please pray for me that it is now time for DBS Surgery. I'm not afraid; not in the least. I am more afraid of staying this way. I won't survive the beating my body is taking from the tremor
We saw some excitement with last year's "new diagnosis" of Functional Neurological Disorder by Dr. Deeb at University of Florida Gainesville / Shands Hospital. It seemed to work. I was titrating off of my high doses of medication and the same time I was working full time, plus taking care of my husband and children. There seemed to be a honeymoon period in there when I was coming off the meds that I seemed to be improving. But that was short-lived over about a 4 week period. Then all my symptoms returned with a vengeance.
My tremor as you can see from the video I made for my last posting announcing my ten year anniversary that I am living incapacitated. I believe my health has been made worse by playing around with my dopamine. Don't take it; do take it" - when? It seems logical that once the stores of 17,000 dopamine pills finally cleared my system, my Parkinson's symptoms went off the charts and has never returned to manageable. Add to that whole-body Dystonia that makes every inch of my body ridged. To the point that the combination of the two - rigidity with high velocity tremor - is causing nerve damage in my wrists, hands, fingers, groin, neck, back, and especially my legs and feet. I have no balance any longer. I fall and can no longer catch my fall so land with my full weight on my hands or my face (as I did in the Midway airport this winter when my sneakers were sticky against the newly polished marble floor. I started to fall forward on my tip toes and ultimately could not right myself so down I went - hard. I quickly picked myself up in pain and headed for my gate with other passengers looking like they just saw a train wreck. That's a good definition of my physical being today - its a train wreck that doctors make no effort to alleviate. I'm not quite sure how worse this needs to get?
Great news to report!! Since being told I actually do not have Parkinson's Disease but that it is rather Functional Neurological Disorder I have been titrating my dopamine down from 18 tablets per day (3 tabs x 6 times per day) to 1 tax x 3 times per day to then get off the Neupro and Amantadine, if possible. I AM DOWN TO 4.5 TABS PER DAY (1.5 tabs x 3 times per day) AND FEELING AMAZING. I am back on my bike and have dropped a good deal of the nastiest symptoms of being on that extreme dosing level, Got me thinking tonight.....Just how many tablets of Sinemet have I taken unnecessarily?
I found my first neurologist's records online purely by accident. They share the same patient record online vendor that my new CBT therapist does. What a surprise to learn the exact dates of the progression since he was the first neurologist I was finally referred to after my first symptom appeared in January 2009. My first visit date was December 8, 2011. Almost 3 years after my first symptom.
My first prescription for Sinimet was given to me on May 8, 2012 for 1/2 tablet x 3 times a day before meals, then titrate up to 1 tablet per day x 3 days after 7 days.
I have been subscribed to the DAILY OM daily email for years. Only because I swear they have hidden a listening device in my home to get the scoop on what I'm talking about, and then they send me (and thousands of others) an email that is directly related to how to positively deal with it - - just about every day. It is way too creepy to ignore so I read it, faithfully, every day.
Right on cue.... here is a copy of their Horoscope email for LEOs for July 1st. (I have to go find that microphone now.)
Wear Your Heart On Your Sleeve
"Lisa Chalker is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."