Have Parkinsons or Are You a Caregiver? Looking for an Online Support Group that Really Works? Check Out MyParkinsonsTeam.com
As you know I've had Parkinson's Disease for 8 years and counting. I have subscribed to and browsed nearly 100 Parkinson's related websites, support groups, and blogs to read up on the latest treatments, funding, research and to listen carefully to how other people, just like me, cope with Parkinson's every day.
Boy, did I find a treasure. You must check it out. I'm not sure how I came across MyParkinsonsTeam.com, but I am so pleased I did. This is not your ordinary Support Group. Its the design that really makes this one work.
Typically a Support Site / Group will allow one member to post a question or comment and everyone responds. Its a bit interactive, but you don't know other member's STORY. When you sign up with MyParkinsonsTeam.com, you start your own profile page that is the most individually comprehensive profile I have reviewed. In your profile page you get to tell everyone your "story" in your own words. You share with others your medications and treatments (what works and what doesn't). You list YOUR personal PD medical team; you can also recommend them or comment on their services. Your profile also includes relationship status and you can participate in a Q&A section with guided questions to answer. I felt right at home immediately.
MyParkinsonsTeam.com was designed for individuals to meet other individuals that are either in their local area (perfect for meeting other PD journey men and woman you didn't know lived close by for support) or have your similar symptom pattern or treatment regimen. Once you find someone who fits the profile of someone you would like to have on your personal "Support Team", you simply add them at the touch of a button and write them an introductory note.
I've only been a member for about a week and I already have a "team" built of 13 like-minded PDers. Although I love my PD circle to be eclectic, I do lean towards the more active, well rounded, fiercely independent survivor who is doing everything they need to do to live with PD successfully and encourage others to do the same. I can hardly believe the wonderful people living with PD I've met so far from around the US. We chat one-on-one, we can meet locally for a cup of coffee, you can write out questions for your "team" to answer, we swap information on what works best, and I have come to look forward to connecting with members of my team on a daily basis. It is not a chore; it is similar to your own PD family you build yourself.
I very highly recommend this PD Support Site. I can easily say its in my Top 3 of all time. Check it out and sign yourself up at www.MyParkinsonsTeam.com. You will thank me later.
Here is my Personal Profile I set up on MyParkinsonsTeam.com. Feel free to add me to your team and let me know what you think of this site.
Good morning, friends! I woke up to the most amazing surprise in my email; it shocked me straight awake. It was from the founder of Feedspot.com, the RSS Feed for bloggers. informing me that my blog has been named one of the TOP 50 PARKINSONS BLOGS on the web today. Click here to see their full story: http://blog.feedspot.com/parkinson_blogs/
The founder, Anuj Agarwal wrote: "I personally give you a high-five and want to thank you for your contribution to this world. This is the most comprehensive list of Top 50 Parkinson Blogs on the internet and I’m honored to have you as part of this!" To say this is a shock is way understating how I feel at the moment.
Their RSS Feed is subscribed by all of the major news organizations (TV, radio, print). If you don't know what an RSS Feed is - you can subscribe to many different publications and Feedpost will send you an email each morning with headlines so you can read what you are interested in vs. having to read every single website individually. Feedsport.com is offering my blog as one of the 50 choices for Parkinson's information available. Please check it out. Go to FEEDSPOT.COM, open an account for yourself and subscribe to my blog along with other amazing outlets, including the Michael J. Fox Foundation, the National Parkinsons Foundation, Parkinsons News Today and the Brian Grant Foundation! I am in their amazing company.
I know I need to breathe, but am having a bit of a hard time doing that. Isn't it funny and incredibly humbling when your life changes in a nanosecond? Synchronicity still thinks I have a way to go before I am perfectly in balance so I give up my control and let the Universe keep re-arranging. Friends, we are on the ride of our lives.
Thank you to Anuj and his crew for this honor. Thank you God for my life every single day. I have a beautiful life I would not trade for anything with beautiful loves and angels surrounding me at all times. Amen.
Do you need support?
Find us on Facebook at:
"Help Take Back My Life in 2016" (aka Lisa's Super Hero PD Support Team)
Connect with me online:
"Lisa Vullo is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."