I am so fortunate to have an amazing Super Hero Support Team to help me through my Journey. Friends have shown their love through surprise pieces I received in the mail this year. I was just admiring them in my jewelry box and thought I would share them with you. They make me smile and fill my heart.
The sterling silver cuff is engraved with my favorite quote (that is found in the footer of my website). I admire Eleanor Roosevelt; a strong woman at a time when women were not expected to excel. She wrote: "The future belongs to those who BELIEVE in the beauty of their dreams." Yes it does.
The brass cuff carries a quote from "Alice's Adventures in Wonderland" by Lewis Carroll. Perfect for those whose lives have been changed drastically. It reads "I can't go back to yesterday because I was a different person then." This reminds me not to dwell on what "was" when my life was so much easier. The day it arrived it made me cry. It is so true. We can't go back, but the future has so much to look forward to, as well.
The last pieces are GIVING KEYS. You know they are one of my favorite charitable organizations supporting those coming out of homelessness in Los Angeles. My bracelet is emblazoned with "STRENGTH". My necklace is stamped with "HOPE". Hope and Strength - two pillars of my life that are deep in my roots. My mother is my role model. Thanks to her, I muster both of these, get up, go out and conquer every day. Thanks Mom.
What reminds you to stay positive and motivated every day? A special thank you to my girlfriends who sent each to me.
I am not sure how much you see that I've become so proficient at the Superwoman thing that when difficult days pop up it may be hard for others around me to grasp how incredibly hard I am working - in that moment (and every moment) - to keep it together.
No doubt about it. I muster up every ounce of everything I am to push through. Tamp it down. Crawl up over it. GET UP. SHOW UP. I zig. I zag. My brain goes into overdrive to find the solution to stay on the rails. And then BANG, I get it done. I NEVER GIVE UP. EVER. I had no idea how strong and courageous I could be until Parkinson's Disease.
I may not appear to have PD in person thanks to life giving meds and my inner resolve. The downside to that is getting the help I need when I need it. Please don't forget I have Parkinson's Disease. If you see me struggling please help me. Find encouraging words. Tell me it's going to be okay. Hold my hand. Don't be afraid. Your strength becomes my strength. Hug me until I stop shaking. Say a prayer with me.
Each of you are my guardian angel. You are with me in those moments. My SuperHero support team; my shining lights. No one is luckier than me.
Okay people....We got this....Let's do this......
Just in case I need emergency assistance. I will be ready.
It was bound to happen. Cynapsus Therapeutics announced today that it is being bought out by Sunovion Pharmaceuticals for $40.50 per share. This morning Cynapsus woke up to $18.36 per share and celebrated the end of that day at $39.70. UP $21.34. Very well deserved. Let's get this drug I am on out to the masses.
I feel so incredibly blessed to be only 1 of 106 on this last leg of the trial. And, of course, I have a story to share from last night. My husband, Lee and I took in an AC/DC concert here in Fort Lauderdale with friends. The concert (with Axl Rose in for Bon Scott doing an A-M-A-Z-I-N-G job, by the way) was soooo much fun. Until three-quarters of the way in. That's when for some bizarre reason, the pounding from the instruments through the speakers made a change in my body and wore my Carb-Levo off in an instant (no kidding). There was no "wear off". It was one minute on and the next off in full tremor. Normally I would have made a beeline for the bathroom and cried out the rest of the concert. It was took early to take more Sinimet so I would have been rocking and rolling (no pun intended, trust me) for another 2 hours until the next dose. Instead I popped a sublingual APL-130277 under my tongue and within 10-15 minutes I was completely still like it never happened. I am still dumbfounded that this miracle drug has entered my life and taken PD on and shut it down.
To everyone around me it looked like I was dancing. To me, my heart was palpitating as I realized I was have a PD attack in a crowd of thousands. Speechless. That's what I am. Grateful beyond words. And humbled by the work of hundreds of researchers who are doing this for me.... and for you.
Thank you Cynapsus. And as always, a very special THANK YOU to the Michael J. Fox Foundation, who without I would be incapacitated at 52 years old. Instead I am very alive, very vibrant, very active, very viable and still enjoying the fruits of a (somewhat) normal life.
2,786 days walking with Parkinsons and counting.
7 years, 7 months, and 17 days.
Ironically that it adds up to the number 22, which is my birthdate and my lucky number
More importantly, it is "MASTER NUMBER" in Kabbalah numerology.
One of the most revered numbers.
The month of August which started my personal cycle to start to skyrocket started out on August 1, 2016 adding up to CHAI. The number 8. Ana, you are right - as usual. You can't get any better than that.
Today is a very good day.
Do you need support?
Find us on Facebook at:
"Help Take Back My Life in 2016" (aka Lisa's Super Hero PD Support Team)
Connect with me online:
"Lisa Vullo is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."