My journey takes me to Dr. Michael Okun and the #1 Team for DBS Surgery at the University of Florida...... Try until we get it done!
This morning at 10 I go off all my meds for 24 hrs. That means living without the help of around 25 pills, capsules and two patches. I already anticipate being paralyzed from full body dystonia. I just hope it comes quickly. The process is painful until it’s done. Then my muscles seize and the pain is gone. The price I have to pay to be evaluated for brain surgery. My fourth attempt. Denied three times in 3 years. I pray for strength and a cure for Parkinson’s for all of us that journey with it. When I recover from this, a life still lived on two feet will be celebrated with gratitude. I assure you.
My appointment is tomorrow morning at the University of Fla Shands Hospital. Thank you to Jim Newman, his wife and daughter for having the compassion and strength to escort me there and hold my hand through it. Thank you Chad Davie and the team at Abbott Labs for your support and calls that got me in to the #1 team for DBS surgery. Without you my sails would have no lift. Thank you to the crew at Conscious Ink. I will wear your tattoos to remind myself to Breathe and be Grateful for this opportunity to add a couple decades to my life. To my YachtCloser family thanks for your love and support that will give me the resources to accomplish this. No one has a better team of guardian angels than me. You are always with me so I don’t have to go this alone.
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"Lisa Vullo is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."