On June 20, 2018, My 3,443 Day Nightmare Has Ended in a Miracle thanks to Shands Hospital at the University of Florida
Under the heading of, "YOU ARE NEVER GOING TO BELIEVE THIS......."
All went better than expected yesterday at the UF Health Shands in Gainesville. The staff at the Movement Disorder and Neurorestoration Center is incredible. Their protocol was unlike any I had been through in the past three attempts at other well known facilities that offer Deep Brain Stimulation surgery I so desperately needed as a Stage 4 Early Onset Parkinson's Disease patient.
My day began with one hour of PT with Alison Kraus, PT, DPT, NCS, and one hour of OT with (my personal guardian angel) Heather Simpson, MOT, OTR/L. I then saw my doctor, Wissam Deeb, MD, who together with the two other health professionals worked as a team to properly diagnose. Dr. Deeb had the very good fortune to deliver unexpected, jaw dropping news to me. I am not able to share the results with you at the moment, but I promise I will soon.
This open letter is to thank the unending love and support from the hundreds on my support team that were praying hard for a miracle. We got one. I lived 3,443 days as a Parkinson's patient. My decade long struggle has a final twist that (just like in a movie) leads me with no forewarning, to a happy ending; one reserved for Miracles from God books.
I am overwhelmed, blessed, and dumbfounded. I have accepted God's miracle with blind faith and am allowing myself some private time to process the last 48 hours.
I go between elation and crying and back. I still have work to do, but its not what you think. I will be back soon to explain what happened.
You seriously are never going to believe this.
I NEVER GAVE UP. Don't you ever, either.........
With joy in my heart,
P.S.: I just re-read my most recent blog posts where I write
DON'T GIVE IN
DON'T GIVE UP
PARKIINSONS WILL NOT WIN
There is a reason everything in life happens, in the order it happens. Their "NO" may have saved me from dying the day that surgery may have been planned. Their "NO" may lead me to the right timing of "YES". Their "NO" may have made me work harder to take care of myself and naturally improve my quality of life in the interim. Their "YES" may have stood in the way of something positive I would have missed out on. Maybe its not time to put holes in my head. Maybe a medicine that will stop my progression will be released and that is what I meant to take. My thoughts are not pointing to sadness. They keep pointing to: Something keeps stopping me from having brain surgery. What? It wasn't supposed to happen today. Why?
Now I know why. The Universe was guiding me to the right answer. My intuition was right on the money!!!!! Trust your gut.
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"Lisa Vullo is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."