Wow!! Slept through the night five nights in a row. It’s been a long time since that has happened. And I woke with no tremor and feel completely normal. I am serious. It’s like I woke up from a bad dream. Too bad the dream ends around one o’clock every afternoon. It’s like Cinderella. When the clock strikes one, the light switch turns off in a nightmare. I feel it progress from my feet, upward. I get slow, my feet curl under, I start to lean my body forward to propel myself. My face droops, I start to lose the fine motor skills in my fingers and I can’t grip hard enough to hold my keys or open a soda bottle. Then I start to tremor, become stiff and walk with my arms bent and shuffle because I can’t lift both feet off the ground at the same time. I forget how to walk heal to toe and it’s over. It’s too weird that the difference is so drastic that I can feel the progression and note every minute of what’s happening.
When my cervical dystonia kicks in by 8pm and I have to take a Kynmobi then it’s time to stop moving around until it kicks it. That stops my neck from breaking (usually takes 5-10 agonizing minutes). Then I’m pooped until the next morning. And I get to be great again.
I wrote Dr Singer yesterday to see if I would be able to take a second Nourianz at 1pm and get another 7 hours relief. It’s expensive but after 9 years of continuously tremoring it is f*^*ing worth every penny!!! I can’t believe the dichotomy. My thinking is slowed to normal and clear each morning. I feel like jumping in the shower and heading off to work. I’m 44 again. My husband is smiling from ear to ear. He can’t believe it either.
This can’t be a dream. Please God let it stay like this and grant me a second dose per day without side effects. Can I get a break for a while from this ass-kicking disease. It’s been 11.5 years. I have been tortured enough. I am submitting a request for a vacation from Parkinson’s for a while to do all the good things I want to accomplish. Thank you. Amen.
I wish this for everyone,
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"Lisa Chalker is One Face of Early Onset Parkinson's Disease. Come along on her journey from symptoms to diagnosis; through treatments and therapies. There are highs and lows, miracles and heart notes, and the determination to never, ever, ever, ever give up on the power of HOPE."